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filipe
Portugal
280 Posts |
 Posted - 07/09/2012 : 17:05:40
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Dear all
I’m 38 years old and I live in Portugal. Due to financial issues it’s impossible for me to go to the USA to be seen by a
TMS specialist.
Three years ago I started doing some exercises with dumbells at home. During one particular exercise I remember feeling an
electric shock that went from my elbow to the tip of my fingers. One day I woke up with what I discover later was severe
neuropathic pain on both arms. Although the EMG was normal, I did an ultrasonography and it showed that my ulnar
peripheral nerve was inflamed.
Despite being better, this inflammation became chronic. One week ago I did another ecography and my ulnar nerve is still
inflamed, which makes it very hard for me to work, namely on the computer, and bending my elbow. In the meantime I read
lots of your books and learnt about the TMS syndrome. However, from what I read on the Net, people say there is no
inflammation and that’s exactly the key issue here because in my case there’s definitely chronic inflammation.
Can you help me figure it out if my problem is TMS? Can you answer me these questions?
-What do you think is perpetuating this chronic inflammation? Do you think it could be a result of the ulnar nerve being
compressed unconsciously by muscles/tendons? Is it this kind of tenderness TMS is all about? Can TMS also be applied here when there's inflammation? If so, why does it
tend to get worse on hot weather?
(this is the noise that my elbow does when I bend it):
http://www.youtube.com/watch?v=h6-ANtdnlVU
-What is your opinion about nerve entrapment syndromes with proven inflammation? What is your opinion on neuropathic pain?
Do nerves fully heal?
-Can oxygen deprivation /ischemia cause inflammation?
-When inflammation is present can we discard a mind-body syndrome?
-Does inflammation cause pain necessarily?
-What is your view on people that say they feel worse with sudden weather changes?
-Could chronic inflammation be perpetuated by an autonomic nervous system not functioning right due to emotional problems?
I do not have any autoimmune disease that could somehow justify chronic neurogenic inflammation.
Please help me I have a son that needs a healthy and active father.
Thanks a lot
God bless you
Filipe |
Edited by - filipe on 07/09/2012 17:13:57 |
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SteveO
USA
272 Posts |
Posted - 07/09/2012 : 17:39:27
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Swelling is absolutely part of the TMS process. I used to get swelling under stress, Dr. Sarno has seen swelling, and Dr. Sopher told me he used to get swelling under stress. I've spoken to many people who get swelling. There is nothing that the brain can't do if it wants to keep you in fear.
You may have hurt your arm lifting dumbbells but TMS quickly moves in to set up camp--this is Phase 2 TMS. Very common.
How long have you had swelling?
Have you lost strength in your arm? Anything that gets worse from weather change is conditioning, injuries don't really get worse with the weather, unless it's frostbite and it's winter.
There are 2 main types of nerves, those encased in bone like the skull and spinal cord. These nerves do not heal, they are non-regenerative that's why they're protected by bones. The other nerves are often referred to as peripheral nerves because they come off of the spine and they are by and large regenerative. But you can kill anything if it's damaged badly enough. If your ulnar nerve is being impinged you would be paralyzed within about 1 minute. I know because I pinched the radial nerve and was paralyzed my hand (page 67, GPD).
I don't think oxygen deprivation can cause swelling, but you should ask a good MD that.
It's not that the autonomic nervous system is not functioning properly with TMS an strong emotions, it's actually working perfectly by warning you of imbalance. The system itself is not malfunctioning, it's doing its job.
Good luck Filipe, it sounds like you've had the workup and that you have TMS.
EstebanO
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filipe
Portugal
280 Posts |
Posted - 07/10/2012 : 03:52:19
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Thanks for replying
Can you explain me more about your radial paralysis ? what do you mean with page 67, GPD? Did Tms cause your paralysis?
My doctor told me that my nerve is entraped at the cubital tunnel which is a ligament where the nerve passes through. He also scared me for the possibility of getting permenent nerve damage. I'm scared and also on a lot of stress because I can't do my job properly. What I'd like to know is if this compression (my arm feels very tense) may be caused by unconscious muscle tension.
Did you see my elbow snapping? Can this be causing my compression?
Thanks
Filipe |
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tennis tom
USA
4749 Posts |
Posted - 07/10/2012 : 07:32:31
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Hi Filipe & EstebanO,
I'll dredge up my own little nerve story to show that there is hope for nerves returning to normal. For the first time in my life, I was in the hospital, for passing out on the bathroom floor, having given myself a duodenal ulcer from taking Aleves by the handful. I called 911 and I'm ambulanced to the ER. The tech tries to get a blood sample but is having difficulty since I'd lost half my blood. He squeezes down real hard on my left inner wrist vein (I think it was my left, it's good when you can't remember which side was injured, shows you are 100% healed). He's apologizing for having to press so hard attempting to find some blood in me to test.
I was in the hospital three days while they transfused and pumped me back up. I felt a tingling numbness in my wrist from where the tech had pressed down so hard trying to squeeze out what little blood was left in me for the lab. Prior to being released, there was a meeting with the disinterested Indian attending physician. I mentioned the wrist tingling/numbness. He said "Don't worry about it, it will go away." I stopped worrying about it and in "due course", sure enough it went away. "Due course" for me was about two weeks to a month, can't say for sure since TMS'ers are quick to forget about the good things the mindbody does to heal focusing on the negative. After three days in the hospital, I went out for a walk to catch my bearings and played in a national tennis tournament two days later. Didn't win but felt and played darn good--after-all I had been blood doping. The power of the placebo versus the nocebo. |
Edited by - tennis tom on 07/10/2012 08:37:01 |
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SteveO
USA
272 Posts |
Posted - 07/10/2012 : 11:54:20
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Filipe
I watched your video. I wonder if it will go viral?
You have lots of strength and power in your arm in that video, it's hard to believe you have an entrapped nerve, but I'm not s doctor. That clicking popping sound means nothing, most people have clicking sounds in their joints.
I trapped my radial nerve for a minute in elbow therapy in rehabilitation and it paralyzed my hand. page 67 was the page in my book where I explained what happened to me.
I don't know what a cubital tunnel is but unconscious tension can cause every health problem imaginable so it certainly can cause "compression."
Unfortunately many doctors like to scare people with dire warnings of danger. It's a good way to make money. Your doctor certainly has you frightened, luckily you found out about TMS. How did you discover TMS?
Only an MD can properly diagnose TMS, but most of us had to diagnose ourselves because most doctors don't know about TMS and don't really care about TMS.
You're in a panic mode. You have to think wisely, do you have full strength in your arm? Is it in serious pain? Is it numb? Are you under stress at home and work?
Do you have Skype? If you have it you can contact me. I can't diagnose you but I can help you understand more.
Be calm, relax, and learn about TMS. Find another doctor for a second opinion.
EstebanO |
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filipe
Portugal
280 Posts |
Posted - 07/10/2012 : 12:29:47
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Can you send me the link to your book?
My skype is:
filipegarciaboy, please contact me :( I'm in panic.... |
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SteveO
USA
272 Posts |
Posted - 07/10/2012 : 12:49:23
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We have to figure a time and day to skype. what's the time difference between us?
I have an important skype Wednesday with a TMS sufferer in Ireland, but I can skype Thursday if we can set a time. That's July 12. I'm available in early evening here, 5 8 PM or so
Esteban
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filipe
Portugal
280 Posts |
Posted - 07/10/2012 : 13:03:53
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It will be great. Did you add my contact already? By the way you didn't send me your link to the book.
I've been in pain for 3 years. My symptoms are more related to weird sensations. I'm afraid of suffering from RSD or something neurodegenerative. Do you know what it is?
Thanks |
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drh7900
USA
194 Posts |
Posted - 07/10/2012 : 13:14:17
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Filipe - you can find his book on Amazon ("The Great Pain Deception" by Steven Ray Ozanich) or on his website paindeception.com.
And I always find myself chuckling at SteveO's subtle humor. Like signing his name as "Esteban" because he's talking to someone in Portugal...that's just awesome lol.
--
Dustin |
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filipe
Portugal
280 Posts |
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SteveO
USA
272 Posts |
Posted - 07/10/2012 : 14:11:24
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CFS is not an autoimmune disorder. That article is way off the truth.
You appear to be in that panic state where you look up diseases on the internet and then try to tie them to your own situation. Don't do that.
Stay away from the internet and health books like Mark Twain told us to. Keep reading about TMS. As long as your doctor has ruled out anything life threatening you should be looking at an emotional cause.
You can get yourself caught up in an anxiety panic by trying to diagnose yourself. Mark Twain said, "I have been through some terrible things in my life, some of which actually happened."
Don't look for problems. If you want to talk let me know.
I also owe several calls to other people. I try to pick the ones who are in panic mode first, but I need to talk to those here who I promised. I will email you soon.
Esteban |
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filipe
Portugal
280 Posts |
Posted - 07/10/2012 : 14:16:50
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I would love to talk to you :)
I'm in a lot of stress and fear. I'm also a recent dad.
What i wanted to tell you is that we can actually inflammed ourselves trough our emotions/CNS... |
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filipe
Portugal
280 Posts |
Posted - 07/10/2012 : 14:35:37
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Hello esteban
I'm a computer teacher and right now I cannot perform my duties. actually my wife is writing this for me. I feel a lot of pain when I bend my elbows like when we are in a computer.
My physiotherapist says my muscles are so thight that they are compressing my nerves. Of course I think it's the other way around. That is, I have my nerves so inflammed that they are tightnhing the muscles.On the other hand, I cannot forget the image of my ulnar nerve being pinched. And also that nerves can't fully heal.
I'm afraid of losing my job, and I start crying everytime I look at my son.
Did you add me on skype?
I really need someone to talk to about this.
thanks
Filipe |
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SteveO
USA
272 Posts |
Posted - 07/10/2012 : 15:55:25
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Filipe, don't worry, you will be ok if you have TMS. You're physician has scared you into more serious problems, they do that often, it's called a nocebo effect, if they take action and it harms you it's called an iatrogenic effect or a civil suit.
I will try to help you. Breathe deeply, relax, and try to calm down. When you tell me you just had a new baby then I know why you have TMS.
Worry makes you worse.
But you have to tell me what time zone you're in. It's 6 PM EST here where I live in Ohio.
Figure out a good time to talk and I'll talk to you. I will add you in skype now to see if you're there now. Give your wife a break to hold the baby, you can type, it will actually help you.
Rest easy...
Esteban/Steve |
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SteveO
USA
272 Posts |
Posted - 07/10/2012 : 17:18:58
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I have you on skype, I called but you're probably in bed rolling around sleeplessly worrying. i've been out of school so long I had to look up the captital of Portugal.
World clock says you're a few minutes after midnight now.
I'll check back later,
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glowgirl
USA
42 Posts |
Posted - 07/24/2012 : 11:29:12
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i was diagnosed with "pudendal neuraligia"
boy did that freak me out.
my entire being screamed NO!
it is slowly getting better...
having read steve's book, i visualize every day that my body is perfectly healed.
pudendal neuraligia is a horrible diagnosis considered experimental even by the medical community. it costs thousands of $$$ to have procedures and expensive surgeries whose outcomes are dubious at best.
makes TMS healing look extremely attractive!
i think sometimes doctors and others just say that when they themselves don't know what is going on.
hope you get better really fast because neuraligia can be really tough.
since i've been telling mine to get the f**k out of Dodge (my body) and also look at my emotions and the incidents that happened when i got it... i think that all has helped alot. |
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lara
USA
101 Posts |
Posted - 07/24/2012 : 13:19:41
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Glowgirl,
Thats exactly my diagnoses! if i hadn't find this forum i would be screamming on my bed,reading posts from a nocebo website for pudendal.sufferes etc
But i decided to take control of my body not my mind controling jt.
i cant say i am pain free but now i can do almost everything i was used to before that horrible diagnose. My pain has increased these days due to stress and mixed emotions with fam issues. What "treatment" are you following apart for the tms approach for the PNE?
i am.still on neurontin ..tms dr says im not ready yet for weanning off.
keep on doing the tms work !!!
A warmth hug .
Lara |
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art
1903 Posts |
Posted - 07/24/2012 : 13:35:05
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I'm always reluctant to read of symptoms and illnesses that are unknown to me for fear of planting the suggestion...
filpe...I have a similar problem with my thumb. Not as painful or debilitating as yours, but I can't play golf anymore and it's a major nuisance.
I'm a long time TMS sufferer and by and large have had great success with TMS self treatment. However the nerve thing, along with some swelling from bursitis has set me back some. To be honest, I have a difficult time accepting that inflammation and swelling can be TMS. I thought I'd read or heard somewhere that sarno treats swelling as evidence of genuine physical problems, and to a certain extent that seem manifestly true to me. Which is to say swelling and inflammation are by defnition physical...
Be interested to hear more SteveO
edit: just to add, I recently kept running with a swollen knee. Ovet a few weeks it finally got so bad I ended up in the hospital where an MRI revealed inflammation and a significant tear in quadriceps tendon. At that point of course I had to accept diagnosis. A complete tear is a serious event in the quadriceps tendon, requiring surgery and a good 6 months rehab |
Edited by - art on 07/24/2012 13:39:16 |
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Erata
63 Posts |
Posted - 07/24/2012 : 17:21:12
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I experienced Bursitis two years ago just after my daughter’s wedding and have no doubt mine was stress related. My ex-husband (our very long and acrimonious divorce had finally been finalized two months prior) was there with his new partner and we were all being civilized for my daughter’s sake. At one point, he put his hand on my elbow in a very showy display of support (showy, because he’d also tried to sue me for over $200K with a vindictive & punitive lawsuit). When I was undressing that evening, I was shocked & alarmed to find a golf-ball sized swelling on the same elbow. I showed my friend, who recognized it as Bursitis, and she assured me it hadn’t been visible earlier (I’d worn a short sleeved blouse to the wedding and sure hadn’t noticed it when I got dressed). The swelling & slight pain gradually decreased over time.
I’m certain the Bursitis episode was a physical manifestation of repressing my rage with someone I experienced as so toxic to my well being, and that he dared to touch me. (Because, man, did I resent politely brushing him off when I really wanted to bitch slap him!)
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art
1903 Posts |
Posted - 07/24/2012 : 18:53:01
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quote:
Originally posted by Erata
I experienced Bursitis two years ago just after my daughter’s wedding and have no doubt mine was stress related. My ex-husband (our very long and acrimonious divorce had finally been finalized two months prior) was there with his new partner and we were all being civilized for my daughter’s sake. At one point, he put his hand on my elbow in a very showy display of support (showy, because he’d also tried to sue me for over $200K with a vindictive & punitive lawsuit). When I was undressing that evening, I was shocked & alarmed to find a golf-ball sized swelling on the same elbow. I showed my friend, who recognized it as Bursitis, and she assured me it hadn’t been visible earlier (I’d worn a short sleeved blouse to the wedding and sure hadn’t noticed it when I got dressed). The swelling & slight pain gradually decreased over time.
I’m certain the Bursitis episode was a physical manifestation of repressing my rage with someone I experienced as so toxic to my well being, and that he dared to touch me. (Because, man, did I resent politely brushing him off when I really wanted to bitch slap him!)
erata.
That's all very interesting. That's actually a great story. And I agree that bursitis can indeed be stress related. IN my mind however, that's not the same as psychosomatic, which implies one can safely ignore the apparent injury/problem. |
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tennis tom
USA
4749 Posts |
Posted - 07/24/2012 : 21:09:43
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Art FYI,
SteveO mentions swelling as a TMS manifestation and the Good Doctor uses the terms psychosomatic and TMS interchangeably.
Hope that helps. |
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neuropathic pain/neuropathy and tms
