| Author |
 Topic  |
|
|
Sandy
Australia
3 Posts |
 Posted - 10/20/2015 : 03:55:18
|
Hi,
I'm new here and just wanted to briefly share my story and ask for your advice and thoughts. I would appreciate any guidance you can offer to help me learn about TMS.
Three months ago, I developed pelvic pain (think very personal pain!) and was diagnosed with Pudendal Neuralgia. Utter shock and panic set in as this is a supposedly rare condition with bleak outcomes. The main website on the topic (ironically called 'Pudendal Hope') is full of very sad stories of people suffering for 5, 10 , 20 years and ending up bedridden and undergoing surgeries that don't work. My gynaecologist just offered strong nerve pain meds but I decided not to take them because I was concerned about side effects and I didn't just want to cover this up, but get rid of it!
I sought a second opinion and after MRI, ultrasound, laparoscopy.... nothing was found except internal pelvic adhesions (prob from a C-secion nearly three years ago) and it was unknown if this was relevant. I didn't seem to relate to the diagnosis.
After some research, I started seeing a Pelvic Floor Physiotherapist in the hope that if this was stress induced I could 'undo' these muscles and end the pain. That wasn't particularly helpful as I don't think she really understood the condition and was confused that my pain was only on one side (left) so she thought it was a nerve problem rather than muscle tension upsetting the nerve. (I must admit I keep coming back to this point myself - why only one side if this relates to muscle tention?)
I was utterly distraught but also confused as to why I would suddenly get this condition with no provocation e.g. no accident. My symptoms seemed to match the criteria for PN yet I was literally just sitting at my son's swimming lessons one afternoon when the pain began. It came and went at first, before becoming constant after a few weeks. I was due to go to the doctor anyhow the next day as I'd been having some abdominal pain that couldn't be explained. This was causing me some anxiety. I was also rather stressed, overwhelmed and a little depressed in general with two young children and a frequently travelling husband. I asked my doctors if stress could cause this and they said definitely not. Stress could make it worse but not cause this. I was brought up to have a lot of respect for doctors and their abilities but I was beginning to have doubts. Hours of interest searches brought me to Abigail Steidley and through her, The Mindbody Prescription, and I began to totally question everything I understood about health and illness, as well as emotions.
I am not very far into this journey and I have limited free time to read-up on all of this put it into practice so please understand if my questions demonstrate my lack of research and reading! I have read The Mindbody Prescription and have just received The Great Pain Deception. Alix's story has been inspirational to me. So now I am trying to be more aware of my emotions (but I've actually never considered myself someone who repressed their emotions - if anything, I would say I am an overly emotional person) and so far, being aware of my emotions and feeling them doesn't seem to be moving me along. I'm also journaling and have made an appointment was a naturopath who use NET Therapy and Emotional Release Bodywork massage. (There are no TMS practitioners in my area or remotely nearby.)
Sorry, that's really not brief at all!
Any thoughts would be gratefully received,
Sandy  |
Edited by - Sandy on 10/20/2015 03:57:49 |
|
|
tennis tom
USA
4749 Posts |
|
|
fredamir
87 Posts |
Posted - 10/20/2015 : 18:39:35
|
Hi Sandy,
Welcome.
Being overly emotional does not mean that you are not repressing anger and rage. Your situation is quite common: feeling overwhelmed, frustrated, tired, lonely and so on can make a person very angry inside.
I see you are trying different therapies, I am conducing a Rapid Recovery from Back and Neck Pain workshop via conference call this Saturday at 9am PST. You may find some useful strategies to eliminate the pain.
http://www.eventbrite.com/e/rapid-recovery-from-back-and-neck-pain-tickets-18815899863
Important thing is that now you know about the mind-body connection.
Take care,
Fred Amir
www.rapidrecovery.net
|
 |
|
|
Sandy
Australia
3 Posts |
Posted - 10/22/2015 : 17:56:54
|
Tennis Tom - Thank you for the link. That looks like a great website and forum
Fredamir - thank you for your kind words of encouragement. You are right that the way I was/am feeling (overwhelmed, frustrated, tired, lonely) can make a person very angry but I feel like I was already aware of all of that already before this started if that makes sense? Am I meant to do something with the anger? Or something about the anger? I thought Sarno says that you just needed to be aware of it or am I oversimplifying that? Your workshop sounds great too., unfortunately the time difference made it 3am Aussie time! |
|
|
| |
Topic |
|
|
|
From PN to TMS
